COFFEE COUNTY, Ga. (WALB) — At just six years old, Coffee County native Everlee Farabow has already faced more medical challenges than many do in a lifetime. But despite seven broken bones and multiple surgeries, her parents say one thing has never broken — her spirit.

Everlee was only two years old when she experienced her first fracture. At the time, her family believed it was a typical toddler injury. But when additional fractures followed, including a break to her right femur. Doctors realized something more serious was happening.

Everlee was later diagnosed with McCune-Albright syndrome, a rare genetic disorder that often comes with fibrous dysplasia, a condition that weakens bones and makes them more prone to breaking.

According to the Cleveland Clinic, “McCune-Albright syndrome (MAS) is a rare, non-inherited genetic disorder caused by a random mutation of the GNAS gene. The condition is typically identified by a triad of symptoms, polyostotic fibrous dysplasia, which causes weakened bone lesions, café-au-lait skin spots, and hyperfunctioning endocrinopathies, most commonly precocious puberty. Symptoms usually appear in early childhood and may include frequent bone fractures, limping, and rapid growth. Because the mutation occurs randomly, the disorder is not inherited and can vary widely in severity.”

“She has a birthmark that runs down the right side of her body, and that ended up being a key indicator,” her mother, Jessica Farabow, said. “We had no idea what this diagnosis even meant at first.”

The diagnosis brought overwhelming news for the family, including early puberty and ongoing medical treatment with no known cure.

“To be only six years old and have seven breaks and two surgeries, that’s a lot,” Jessica said. “Some days are really hard.” Still, Everlee refuses to slow down.

Her father, Jordan Farabow, says her resilience amazes everyone around her. “When she broke her femur and came home from surgery, she was already trying to figure out how to ride her four-wheeler again,” he said. “Nothing gets her down. That’s just who she is.”

Last summer, Everlee’s journey led her family to the National Institutes of Health, where doctors studying rare bone disorders are researching conditions like hers. Through fundraising efforts tied to Rare Disease Day, Jessica connected with other parents across the country facing similar challenges.

Doctors have since connected Everlee with a specialist in Orlando who has performed both of her surgeries, giving the family renewed hope.

Just last week, Everlee suffered her most recent fracture after falling while walking at school, marking what her family calls “break number seven.” But even in a cast that runs up her leg, Everlee says she’s already planning her next adventure.

“I want to ride my four-wheeler,” Everlee said with a smile.

The Farabow family says they would not have been able to navigate this journey without the support of their community. They credit neighbors, friends, and supporters for helping cover travel costs, medical expenses, meals, and lodging during Everlee’s out-of-state treatments.

“Without our community, we truly couldn’t have done this,” the family said. “Their support has meant everything to us.”

They hope Everlee’s story not only raises awareness for rare diseases but also reminds families facing similar diagnoses that they are not alone.

Rare Disease Day is recognized on February 28, a date the Farabow family hopes will help shine a light on conditions like McCune-Albright syndrome and the families impacted by them.

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